Saturday 5 November 2011

At last- a diagnosis!!!!!

Yay! I finally got a diagnosis of POTS on Thursday. They didn't even need to do the scheduled tilt table test I was there for. Just a series of supine, followed by standing b.p. readings plus an odd test I don't know the name of which required me breathing into a plastic tube connected to a pressure gauge whilst trying to blow hard enough to get it up to a red line drawn on the glass of the gauge and keep it there whilst feeling like my head and lungs were going to explode. The doctor also took a detailed history from me and examined with interest my weird hyper-mobile joints, flat feet and tongue that can reach the tip of my nose whilst some other dude took photo's (which better not end up on the internet!) of my bendy abilities.
I wish I could write more and I hope if/ when I'm feeling better I'll recoup some of my mental energy but at the moment I'm as flat as a car battery after the ordeal of the last eight months or so. Well, a lifetime really but especially the last eight months since arriving in Australia. It's so weird, I'm reflecting on so much and like the Radiohead song- it really is like a jigsaw falling into place.
I have to go back to the hospital on Tuesday to see the consultant in these matters as I'm told he'll really want to see my knees!

1 comment:

  1. I wonder if they are looking for marfans syndrome. Glad you finally got to find out for sure. Stay strong and don't gve up

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