Sunday 6 November 2011

Another bloody symptom!

Flippin' heck I'm getting really fed up of this not to mention scared! It seems like every day brings a new and horrible symptom. Now I can't wee properly. I have a doc's appointment this afternoon although I'm not sure if he'll be able to do anything and a hospital appointment with the consultant on Wednesday which can't come soon enough.
What a journey. I want to go home to England where I can deal with this around the people I know and love. :-(

Saturday 5 November 2011

At last- a diagnosis!!!!!

Yay! I finally got a diagnosis of POTS on Thursday. They didn't even need to do the scheduled tilt table test I was there for. Just a series of supine, followed by standing b.p. readings plus an odd test I don't know the name of which required me breathing into a plastic tube connected to a pressure gauge whilst trying to blow hard enough to get it up to a red line drawn on the glass of the gauge and keep it there whilst feeling like my head and lungs were going to explode. The doctor also took a detailed history from me and examined with interest my weird hyper-mobile joints, flat feet and tongue that can reach the tip of my nose whilst some other dude took photo's (which better not end up on the internet!) of my bendy abilities.
I wish I could write more and I hope if/ when I'm feeling better I'll recoup some of my mental energy but at the moment I'm as flat as a car battery after the ordeal of the last eight months or so. Well, a lifetime really but especially the last eight months since arriving in Australia. It's so weird, I'm reflecting on so much and like the Radiohead song- it really is like a jigsaw falling into place.
I have to go back to the hospital on Tuesday to see the consultant in these matters as I'm told he'll really want to see my knees!